Tuesday, March 12, 2013

MTHFR Resources

An independent researcher, Richard van Konynenburg, PhD., developed a hypothesis that a genetic defect* which causes MTHFR deficiency might be a fundamental cause of ME/CFS and similar illnesses.  Rich's hypothesis was based on Dr. Amy Yasko's work related to the same genetic defect in autistic children.

Essentially, Rich's hypothesis says that the MTHFR genetic defect impairs the body's methylation pathway and consequently its ability to manufacture glutathione, and that an insufficient level of this essential amino acid compound in the body can result in many metabolic dysfunctions. These dysfunctions manifest in diverse symptoms, including fatigue, cognitive impairment, pain, thyroid dysfunction (low body temperature, intolerance of heat and cold), low cortisol levels, low blood volume, poor elimination of toxins and many others associated with ME/CFS and other chronic but poorly understood illnesses.

Thursday, January 10, 2013

I'm a Mutant!

MTHFR Deficiency and Defective Genes (Updated 1/21 and 5/2/13)

Mutated Genes and Me ... and Maybe You?

Recently, thanks to a suggestion by a treasured friend, I found out that I have a genetic defect which results in something called MTHFR deficiency. This mutation can cause a wide range of symptoms:

MTHFR Mutations and the Conditions they Cause - from MTHFR.net, Dr. Ben Lynch's site
Symptoms of MTHFR Deficiency - from Methy-Life.com, Jaime Horne's site

Some of the symptoms include depression, addictions (smoking, drugs, and alchohol), miscarriages (my poor mother had four!), Chronic Fatigue Syndrome, chemical sensitivities, Fibromyalgia (if I recall correctly, my older sister had this), autism (I suspect I may have a relatively mild form of Asperger's), childhood cognitive development deficits, migraines, Alzheimer's, and dementia (poor Mom again!)

Tuesday, October 16, 2012

One Year of Coiling

In a few days I will have been experimenting with my coil machine for a year. Since my last update was in May, almost six months ago, I figure it's time for another.

From May till the end of August I coiled for Lyme every two weeks and coiled for Bartonella every other day. During this time I got sicker and sicker. The Lyme sessions were causing more and more severe herxing (Jarisch-Herxheimer reactions) which lasted longer and longer.

I think this was probably because for the entire time from late January through the end of August I increased the length of each Lyme coiling session by 15 seconds compared to the previous session, so in each session I was killing more and more Borrelia spirochetes. As a result, the toxins from their tiny corpses were evidently accumulating in my body faster than my immune system could get rid of them.

Can Oscillating Magnetic Fields Really Kill Microorganisms? Let's Ask the FDA...

I found some recent discussions with two authorities on Lyme to be quite stimulating, and after the second such discussion I went looking for an article I'd read somewhere about a study the FDA had done which showed that microorganisms can be killed by oscillating electromagnetic fields similar to those generated by my coil machine.

After all, if the FDA has found that this technology can kill microorganisms in food, doesn't it make sense that it can also kill microorganisms - such as Lyme spirochetes - in people? Doesn't this question deserve further study?

Tuesday, May 22, 2012

Coiling update, May 2012

I've been coiling for Lyme for five months, so I figure it's time for an update.

As I mentioned in an earlier post, my initial experiments in coiling for Lyme resulted in brutal headaches and other symptoms followed by a few days in which I felt much better - and had more energy - than I had in a very long time.

After four sessions in January using 306 Hz, I decided to switch to 432 Hz. I made this decision because a friend stressed that, while 306 is more effective at killing Lyme spirochetes than 432, it's also harder on the body. "Doug Maclean said he was vomiting up blood," she told me.

[Update: I've since learned that it was 655 Hz, not 306, which made Doug vomit up blood. I've heard that Doug considers 306 Hz to be less effective at killing Lyme spirochetes than 432 Hz.]

So in early February, I started over at 15 seconds on 432. I didn't get much herxing at 15, 30, and 45 seconds, which is the longest I'd gone at 306. When I reached 60 seconds on 432, the brutal headaches returned, only now they didn't start until about four days after the coiling session.

Monday, February 6, 2012

Doug coil machine resources

Warning! See a doctor before subjecting yourself to electromagnetic fields*! 

(*Excluding, of course, the perfectly safe EMF from your house wiring, your cell phone, your television, your computer, your car's engine, florescent bulbs, WiFi hotspots, cell towers, radio and TV stations, military radar, high tension lines, and other approved and highly profitable sources of EMF.)

As it says in my disclaimer, I'm not a doctor. I'm only sharing my personal experiences. In case someone might be crazy enough to try experimenting with a Doug coil machine (or any type of Rife machine) like I've done, I've created a list of some resources I found interesting.

Before an ordinary person, lunatic or otherwise, were to build or buy a coil machine, or experiment with any type of Rife machine, it would seem prudent to do some research. I started with Bryan Rosner's excellent book, Lime Disease and Rife Machines.

When I was wondering what exactly a Doug coil machine is, I found What's a coil machine? to be quite helpful. This is part of a fascinating and meticulously maintained blog by a woman who has been experimenting with a Doug coil machine since January 2011. I also like her unscientific explanation of how a coil machine might kill pathogens. The video of the collapse of the Tacoma Narrows bridge is particularly graphic. Don't let young children or pets watch it without supervision.

I also loved Bryan Rosner's interview with Doug MacLean, inventor of the Doug coil machine. His story is quite inspiring.

Last but not least, I experienced a sharp stab of malicious joy while watching some spirochetes being stunned into stillness by the EMF generated by a Doug coil machine. If you are reckless enough to watch this video, keep an eye on the corkscrew-shaped microbes. Poor little things.

A New Direction: Coiling for Lyme

Going over to the Dark ... er, Lunatic Fringe Side.

By now you have probably heard about the collapse of XMRV research by Judy Mikovits and the Whittemore Peterson Institute. If you haven't, details of the whole sordid story are available at X Rx Blog and Phoenix Rising, among many other sources.

The news of this disaster came at a very bad time for me. In the fall of 2009, samples of my blood submitted to IgeneX came back positive for Lyme disease and Bartonella. I opted to try an acupuncture and herbal treatment regime with Tim Scott.

Through the winter of '09-10, I had some improvement, but was still far from well. In the spring, after stopping the homepathic and acupuncture treatments, I had a short period of feeling much better, but then I deteriorated dramatically. My symptoms escalated, and a new symptom, severe dizziness, emerged.

By late summer 2010 I was no longer able to even do my own grocery shopping. The very limited social activities I'd been able to engage in (mainly occasional lunches with friends) came to an end. As you can imagine, these new developments were very discouraging. I'd been sick since late 1994, but I had always believed on some level that I would get well, that somehow or other I would find a way to recover. This new major progression of the illness destroyed that belief.