Monday, January 10, 2011

The Human Cost

Millions of people suffer from the ghastly disease known as "Chronic Fatigue Syndrome." Some can still function, with limitations, but for others life has been reduced to a dreary, pain-filled hell unimaginable to those who are not touched by the disease.

One woman has to be taken to the bathroom in a wheelchair. Another, having developed a brutal sensitivity to light, must navigate her home by touch, lights out, windows sealed against the faintest ray from the sun. Yet another spent the best part of a year living on her bathroom floor, unable to crawl back to her bed.

While the government agencies who are supposed to be helping these people continue to dance away from their responsibilities, thousands live with equally devastating horrors. Some are homebound, others bedbound; some are unable to read, others unable to speak; many require round the clock care. Yet these people - isolated, in agony, lives in ruins - still cling to hope.

For the most part, because they are too ill to participate in life in any meaningful way, these people are invisible.

Here are some of their stories.
These horrifying stories make me grateful that - although I can no longer work, socialize, or even shop for my own groceries - I am still able to make my own meals, get myself to the bathroom, and occasionally get out to go to a medical appointment.

But these stories also frighten me, because they foretell what is likely in store for me if effective treatments are not found soon.


  1. Thank you for this post. I really enjoyed reading it and discovering all those blogs.

    I share your thoughts about this is what my future may look like. This past year has seen a major decline in my health.

    I have grabbed your feed as I would like to continue reading it and will add a link on my blog.

    Again, thank you.

  2. Thank you, Dominique! I'm glad to know that my blog is helpful. I hope both of us, and many others, find a way to reverse the trend and move toward better health in the coming year.