I've been coiling for Lyme for five months, so I figure it's time for an update.
As I mentioned in an earlier post, my initial experiments in coiling for Lyme resulted in brutal headaches and other symptoms followed by a few days in which I felt much better - and had more energy - than I had in a very long time.
After four sessions in January using 306 Hz, I decided to switch to 432 Hz. I made this decision because a friend stressed that, while 306 is more effective at killing Lyme spirochetes than 432, it's also harder on the body. "Doug Maclean said he was vomiting up blood," she told me.
[Update: I've since learned that it was 655 Hz, not 306, which made Doug vomit up blood. I've heard that Doug considers 306 Hz to be less effective at killing Lyme spirochetes than 432 Hz.]
So in early February, I started over at 15 seconds on 432. I didn't get much herxing at 15, 30, and 45 seconds, which is the longest I'd gone at 306. When I reached 60 seconds on 432, the brutal headaches returned, only now they didn't start until about four days after the coiling session.
Tuesday, May 22, 2012
Monday, February 6, 2012
Doug coil machine resources
Warning! See a doctor before subjecting yourself to electromagnetic fields*!
(*Excluding, of course, the perfectly safe EMF from your house wiring, your cell phone, your television, your computer, your car's engine, florescent bulbs, WiFi hotspots, cell towers, radio and TV stations, military radar, high tension lines, and other approved and highly profitable sources of EMF.)
As it says in my disclaimer, I'm not a doctor. I'm only sharing my personal experiences. In case someone might be crazy enough to try experimenting with a Doug coil machine (or any type of Rife machine) like I've done, I've created a list of some resources I found interesting.
Before an ordinary person, lunatic or otherwise, were to build or buy a coil machine, or experiment with any type of Rife machine, it would seem prudent to do some research. I started with Bryan Rosner's excellent book, Lime Disease and Rife Machines.
When I was wondering what exactly a Doug coil machine is, I found What's a coil machine? to be quite helpful. This is part of a fascinating and meticulously maintained blog by a woman who has been experimenting with a Doug coil machine since January 2011. I also like her unscientific explanation of how a coil machine might kill pathogens. The video of the collapse of the Tacoma Narrows bridge is particularly graphic. Don't let young children or pets watch it without supervision.
I also loved Bryan Rosner's interview with Doug MacLean, inventor of the Doug coil machine. His story is quite inspiring.
Last but not least, I experienced a sharp stab of malicious joy while watching some spirochetes being stunned into stillness by the EMF generated by a Doug coil machine. If you are reckless enough to watch this video, keep an eye on the corkscrew-shaped microbes. Poor little things.
(*Excluding, of course, the perfectly safe EMF from your house wiring, your cell phone, your television, your computer, your car's engine, florescent bulbs, WiFi hotspots, cell towers, radio and TV stations, military radar, high tension lines, and other approved and highly profitable sources of EMF.)
As it says in my disclaimer, I'm not a doctor. I'm only sharing my personal experiences. In case someone might be crazy enough to try experimenting with a Doug coil machine (or any type of Rife machine) like I've done, I've created a list of some resources I found interesting.
Before an ordinary person, lunatic or otherwise, were to build or buy a coil machine, or experiment with any type of Rife machine, it would seem prudent to do some research. I started with Bryan Rosner's excellent book, Lime Disease and Rife Machines.
When I was wondering what exactly a Doug coil machine is, I found What's a coil machine? to be quite helpful. This is part of a fascinating and meticulously maintained blog by a woman who has been experimenting with a Doug coil machine since January 2011. I also like her unscientific explanation of how a coil machine might kill pathogens. The video of the collapse of the Tacoma Narrows bridge is particularly graphic. Don't let young children or pets watch it without supervision.
I also loved Bryan Rosner's interview with Doug MacLean, inventor of the Doug coil machine. His story is quite inspiring.
Last but not least, I experienced a sharp stab of malicious joy while watching some spirochetes being stunned into stillness by the EMF generated by a Doug coil machine. If you are reckless enough to watch this video, keep an eye on the corkscrew-shaped microbes. Poor little things.
A New Direction: Coiling for Lyme
Going over to the Dark ... er, Lunatic Fringe Side.
By now you have probably heard about the collapse of XMRV research by Judy Mikovits and the Whittemore Peterson Institute. If you haven't, details of the whole sordid story are available at X Rx Blog and Phoenix Rising, among many other sources.
The news of this disaster came at a very bad time for me. In the fall of 2009, samples of my blood submitted to IgeneX came back positive for Lyme disease and Bartonella. I opted to try an acupuncture and herbal treatment regime with Tim Scott.
Through the winter of '09-10, I had some improvement, but was still far from well. In the spring, after stopping the homepathic and acupuncture treatments, I had a short period of feeling much better, but then I deteriorated dramatically. My symptoms escalated, and a new symptom, severe dizziness, emerged.
By late summer 2010 I was no longer able to even do my own grocery shopping. The very limited social activities I'd been able to engage in (mainly occasional lunches with friends) came to an end. As you can imagine, these new developments were very discouraging. I'd been sick since late 1994, but I had always believed on some level that I would get well, that somehow or other I would find a way to recover. This new major progression of the illness destroyed that belief.
By now you have probably heard about the collapse of XMRV research by Judy Mikovits and the Whittemore Peterson Institute. If you haven't, details of the whole sordid story are available at X Rx Blog and Phoenix Rising, among many other sources.
The news of this disaster came at a very bad time for me. In the fall of 2009, samples of my blood submitted to IgeneX came back positive for Lyme disease and Bartonella. I opted to try an acupuncture and herbal treatment regime with Tim Scott.
Through the winter of '09-10, I had some improvement, but was still far from well. In the spring, after stopping the homepathic and acupuncture treatments, I had a short period of feeling much better, but then I deteriorated dramatically. My symptoms escalated, and a new symptom, severe dizziness, emerged.
By late summer 2010 I was no longer able to even do my own grocery shopping. The very limited social activities I'd been able to engage in (mainly occasional lunches with friends) came to an end. As you can imagine, these new developments were very discouraging. I'd been sick since late 1994, but I had always believed on some level that I would get well, that somehow or other I would find a way to recover. This new major progression of the illness destroyed that belief.
Monday, June 13, 2011
Failed XMRV "Replication" Studies
Several studies have been published in recent months in which scientists were unable to find XMRV in patients diagnosed with ME/CFS. Authors of these studies and others have claimed that these results discredit the seminal XMRV study by Lombardi/Mikovits of the Whittemore Peterson Institute and contend that Mikovits' results must have been due to laboratory contamination.
As a result of these studies, Science magazine published an Editorial Expression of Concern, which casts doubt on the Lombardi/Mikovits XMRV study which Science themselves published in October 2009. Here are responses from the WPI:
Dr. Judy Mikovits
Annette Whittemore
WPI Clinical Advisory Board
Below is a comparison of the parameters, tests, and methodologies used in the failed studies, the Lombardi/Mikovits study and the Alter/Lo study, which found an association between ME/CFS and MLV's (Murine Leukemia Viruses).
A Comparison of Methods for the Detection and Association of XMRV in Chronic Fatigue Syndrome
None of the failed studies came anywhere close to replicating the work of Lombardi/Mikovits and Alter/Lo. Saying these studies disprove anything is like saying that just because my paper airplane can't fly across the street, humans can't possibly have made it into space.
As a result of these studies, Science magazine published an Editorial Expression of Concern, which casts doubt on the Lombardi/Mikovits XMRV study which Science themselves published in October 2009. Here are responses from the WPI:
Dr. Judy Mikovits
Annette Whittemore
WPI Clinical Advisory Board
Below is a comparison of the parameters, tests, and methodologies used in the failed studies, the Lombardi/Mikovits study and the Alter/Lo study, which found an association between ME/CFS and MLV's (Murine Leukemia Viruses).
A Comparison of Methods for the Detection and Association of XMRV in Chronic Fatigue Syndrome
None of the failed studies came anywhere close to replicating the work of Lombardi/Mikovits and Alter/Lo. Saying these studies disprove anything is like saying that just because my paper airplane can't fly across the street, humans can't possibly have made it into space.
XMRV/ME/CFS and Inflammation
Two studies regarding inflammation in people with ME/CFS have been published recently.
The Whittemere Peterson Institute published Xenotropic Murine Leukemia Virus-related Virus-associated Chronic Fatigue Syndrome Reveals a Distinct Inflammatory Signature, which reveals a distinct cytokine and chemokine signature in people with XMRV-associated CFS and suggests a possible diagnostic procedure for the disease. (Thanks to Dr. Jamie Deckoff-Jones for publishing a link to this study in her blog.)
Also, a study, Exercise Challenge Reveals Potential CFS Biomarkers, explores biological responses to mild exercise in people with CFS. This study, by a University of Utah group affiliated with the CFIDS Association of America, supports the personal observations of many of us with ME/CFS who find that even very mild exertion can cause a significant relapse and/or severe exacerbation of symptoms.
The study also found that the use of anticonvulsants can have a beneficial effect, reducing this post-exertional relapse.
The Whittemere Peterson Institute published Xenotropic Murine Leukemia Virus-related Virus-associated Chronic Fatigue Syndrome Reveals a Distinct Inflammatory Signature, which reveals a distinct cytokine and chemokine signature in people with XMRV-associated CFS and suggests a possible diagnostic procedure for the disease. (Thanks to Dr. Jamie Deckoff-Jones for publishing a link to this study in her blog.)
Also, a study, Exercise Challenge Reveals Potential CFS Biomarkers, explores biological responses to mild exercise in people with CFS. This study, by a University of Utah group affiliated with the CFIDS Association of America, supports the personal observations of many of us with ME/CFS who find that even very mild exertion can cause a significant relapse and/or severe exacerbation of symptoms.
The study also found that the use of anticonvulsants can have a beneficial effect, reducing this post-exertional relapse.
Friday, February 25, 2011
Dr. Deckoff and the new WPI clinic
Dr. Jamie Deckoff-Jones is now working for the Whittemore Peterson Institute, hiring staff for their new clinic, which will be treating neuro-immune diseases, including CFS/ME, Lyme, and autism - and feeding what they learn back to the WPI's research center.
Monday, January 10, 2011
The Human Cost
Millions of people suffer from the ghastly disease known as "Chronic Fatigue Syndrome." Some can still function, with limitations, but for others life has been reduced to a dreary, pain-filled hell unimaginable to those who are not touched by the disease.
One woman has to be taken to the bathroom in a wheelchair. Another, having developed a brutal sensitivity to light, must navigate her home by touch, lights out, windows sealed against the faintest ray from the sun. Yet another spent the best part of a year living on her bathroom floor, unable to crawl back to her bed.
While the government agencies who are supposed to be helping these people continue to dance away from their responsibilities, thousands live with equally devastating horrors. Some are homebound, others bedbound; some are unable to read, others unable to speak; many require round the clock care. Yet these people - isolated, in agony, lives in ruins - still cling to hope.
For the most part, because they are too ill to participate in life in any meaningful way, these people are invisible.
Here are some of their stories.
One woman has to be taken to the bathroom in a wheelchair. Another, having developed a brutal sensitivity to light, must navigate her home by touch, lights out, windows sealed against the faintest ray from the sun. Yet another spent the best part of a year living on her bathroom floor, unable to crawl back to her bed.
While the government agencies who are supposed to be helping these people continue to dance away from their responsibilities, thousands live with equally devastating horrors. Some are homebound, others bedbound; some are unable to read, others unable to speak; many require round the clock care. Yet these people - isolated, in agony, lives in ruins - still cling to hope.
For the most part, because they are too ill to participate in life in any meaningful way, these people are invisible.
Here are some of their stories.
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